Holly - Epidermolysis Bullosa

My name is Holly Gilshnan. I’m 18, and have a rare fragile skin condition called Epidermolysis Bullosa (EB). This means my skin blisters with the slightest knock, and sometimes for no reason.

I don’t have cancer, but I have been drinking SeaCare for many years now and I believe it has helped me in many ways.

SeaCare has helped my wounds heal faster. My skin is constantly healing from blisters and broken down wounds. I still have to be careful not to get infections and to stay healthy, but after drinking SeaCare my wounds heal more quickly. Some of my wounds used to be stick around for years, and that’s no longer the case.

My appetite improved very soon after I started drinking SeaCare.  I started asking for vegetables for tea every night especially broccoli, and I can now drink two or three Fortisip drinks (hospital protein drinks) in a row. This has allowed me to continue to grow and develop. As a teenage girl this is so important to me - to look like a young adult and not a 10-year-old girl.

SeaCare boosts my immune system giving me a better quality of life, and helps with my energy levels, which also means I have a better quality of life. SeaCare also helps to cleanse my system.

 

JOURNAL:

I increased my dose and have an increase in appetite

29th July 2014

I have only ever taken one SeaCare per day. But for the past month I have been taking 2 per day. I have noticed an increase in my appetite and I am able to eat even more healthy food and drink.

Nutrition is so important for my health

29th November 2014

When I started taking two SeaCare each day I pretty much straight away noticed an improvement in my appetite.
I now find myself asking for more food which is a marked difference from what I was doing.
Nutrition is so important for my health, healing, growth, energy and quality of life.
I am so thrilled to say I have grown 5cm taller this year. I am very happy about this as it can be such a challenge to
grow, put on weight and develop with my condition (E.B), as my body is always healing.
During the winter and spring I caught every illness going around. That is unusual or me. 
When I am unwell my skin gets worse with more blisters and larger wounds. 
The skin on my forehead breaks down and even my ears blister inside and out. 
Recently I found out I had a bad infection and that's when I realised why I was so vulnerable to so many bad colds and illness.
I am pleased to say I am now on top of this and my health is now stable. I am back to being positive and happy.
I feel so much more confident when my face has clear skin, and I look much healthier.
Thanks to SeaCare I get a great boost of nutrition, much needed.

Back to being positive again.

11th March 2015

Just to keep you updated on my health. I have had gout in my right ankle and also infection. I am now feeling much better as I am on top of these issues. Back to being positive again.

I am feeling good and doing well now

13th August 2015

I am happy to tell you that I am feeling good and doing well now. This year I have had a few different infections. I have got on top of them now. Last week I had a runny nose for three days, I got over this quite quickly compared to dad who was ill for days and off work. Every day I drink two SeaCare and have done so for some time now.

Recovering from dental surgery

21st December 2015

At the moment I am recovering from dental surgery, which was successful. An enormous amount of skill and extra time was needed for my treatment, as I have a lot of scaring and this has caused a very limited opening of my mouth. My nostrils also have a lot of scarring. They needed to be dilated so the air tube could fit in for the anesthetic. (Scarring is caused by repeated cycle of blistering and healed skin). Because my skin is fragile the skin on my bottom lip was mostly rubbed of as I had some teeth extracted. I expected this to happen and really this is minimal damage. There could have very easily been a lot of other issues. So I am thrilled to be healing and recovering quickly thanks to SeaCare. This gives me a HUGE constant boost of nutrition which is what my body needs everyday.

7th October 2016

Hi everyone, I recently attended an Australasian E.B (Epidermolysis Bullosa) conference in Christchurch for people with the same condition as myself. I have not seen some of the people from Australia since I was 14 years old, that was seven years ago.

After seeing me for the first time in years they commented to me;

Holly you are so tall !!!

Holly you can stand up straight  !!!

Holly I love your hair  !!!!

Holly you are walking so well  !!!
 

This has made me realise just how much I've improved since last seeing them. I do remember being so bent over when I walked, and I even struggled to stand for short lengths of time.

My stamina has improved so much, my hair is much thicker now, even my hairdresser comments on it. Just a week ago, my Grandmother commented how much taller I've grown in a matter of months since she last saw me. My wounds/blisters are healing well which makes life that little bit easier for me.

Thanks SeaCare.

Holly Gilshnan

My energy levels and skin feel better than they have been in a long time

25th May 2017

At present my skin is the best it has been in a long time, which means everyday things are much easier to do than they have been.

I have had a chronic wound on my right knee for about 4 years now, which covered all of my knee cap. Now this wound is well over half healed. This means walking and bending/flexing my knee is more comfortable.

My energy levels feel better than they have been, most likely because I have less blisters and smaller wound areas.

I am having blood tests next week to check my iron levels. Low iron levels are an on going issue for me.

I am feeling energetic now so hopefully my levels are good, I'll keep you updated when the results come through. 

Even though I'm not a big fan of the taste of SeaCare I know it is of great benefit to my overall health.

This has made me realise just how much I've improved.

Haven't I Grown

4th November 2017

Having surgery on Tuesday the 7th Nov to remove another skin C. These are a certain type to do

with my condition.

Haven't I grown. Thanks SeaCare.

I would not have grown much at all with out it.

My specialist was nicely surprised!

25th May 2018

I continue to drink 3 SeaCare a day.

My bone density has increased by 20 percent in my spine and also 10 percent through out the rest of my body. My specialist was nicely surprised by this and said we did not expect this to improve.

I am really happy with my weight now as I have managed to put on some weight at last. I was weighed in hospital in the middle of December 2017. I could not believe I was 45.5kg.

I am so happy with this. All of my life I have been very underweight, due to swallowing issues and because my skin is constantly blistering and healing.

I continue to grow taller which is awesome. The other day a lady thought I was about 17 years old. I am happy with that.

The old chronic wound on my right knee has healed, but this re-blisters again from time to time. That is what EB does. It is under control now. At present I only have a small wound. 

This year I have had more skin cancers removed from my right foot. Also I have had 3 deep wounds, similar to what the elderly get. One was under my right foot and one on my bottom, these have healed now. The third one is on the outer side of my left ankle, which is only now beginning to heal.

I also have had two large wound areas on the back of my thighs. They are healing in now, very slowly. I don't think it helped that I was drinking chlorinated water one very hot day in March when we were away. Now I do not drink chlorinated water.

Thanks SeaCare.

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